Relationship of social and family support with the acceptance of pain in patients with fibromyalgia

  1. Julia María Cuetos Pérez 1
  2. Isaac Amigo Vázquez 1
  1. 1 Universidad de Oviedo
    info

    Universidad de Oviedo

    Oviedo, España

    ROR https://ror.org/006gksa02

Revista:
International journal of psychology and psychological therapy

ISSN: 1577-7057

Año de publicación: 2018

Volumen: 18

Número: 2

Páginas: 151-161

Tipo: Artículo

DIALNET GOOGLE SCHOLAR lock_openDialnet editor

Otras publicaciones en: International journal of psychology and psychological therapy

Resumen

Relationship of Social and Family Support with Acceptance of Pain in Patients with Fibromialgia. Acceptance of chronic pain and relational context have been shown to be important in patients with fibromyalgia. The aim of this study was to know if social and family support are related to the acceptance of pain in these patients. The study involved 55 people with fibromyalgia. To collect the data, a sociodemographic questionnaire was used and the impact of fibromyalgia, pain acceptance, family satisfaction, family cohesion and social support were evaluated. Regression analysis shows how involvement in activities is predicted by family satisfaction and the year of diagnosis. Family cohesion predicts openness to pain, and full acceptance is predicted by family satisfaction, social support and the year of diagnosis. It is concluded that family satisfaction and social support predict the acceptance of chronic pain, regardless of the physical impact of the disease. The need for a family intervention with patients with fibromyalgia in order to enhance their process of acceptance of pain is pointed out. In addition, it is considered necessary to stop the delay in the diagnosis for a better prognosis.

Referencias bibliográficas

  • Ainsworth MD y Bell SM (1970). Apego, exploración y separación, ilustrados a través de la conducta de niños de un año en una situación extraña. En J Delval (Ed.) Lecturas de psicología del niño, vol. 1. Madrid: Alianza.
  • Andreu JL y Sanz J (2005). La fibromialgia y su diagnóstico. Revista Clínica Española, 205, 333-336. Doi: 10.1157/13077119
  • Arnold LM, Crofford LJ, Mease PJ, Burgess SM, Palmer SC, Abetz L y Martin SA (2008). Patient perspectives on the impact of fibromyalgia. Patient Education and Counseling, 73, 114-120. Doi: 10.1016/j.pec.2008.06.005
  • Åsbring P y Närvänen AL (2002). Women’s experiences of stigma in relation to chronic fatigue syndrome and fibromyalgia. Qualitative Health Research, 12, 148-160. Doi: 10.1177/104973230201200202
  • Barraca MJ y López Yarto EL (1999). ESFA. Escala de satisfacción familiar por adjetivos. Madrid: TEA.
  • Bellón JA, Delgado A, Luna del Castillo JD y Lardelli P (1996). Validez y fiabilidad del cuestionario de apoyo social funcional Duke-UNC-11. Atención Primaria, 18, 153-163.
  • Borchers AT y Gershwin ME (2015). Fibromyalgia: A Critical and Comprehensive Review. Clinical Rev Allergy Immunology, 49, 100-151. Doi: 10.1007/s12016-015-8509-4
  • Branco JC, Bannwarth B, Failde I, Carbonell JA, Blotman F, Spaeth M, Saraiva F, Nacci F, Thomas E, Caubère JP, Le Lay K, Taieb C y Matucci-Cerinic M (2010). Prevalence of Fibromyalgia: A Survey in Five European Countries. Seminars in Arthritis and Rheumatism. 39, 448-453. Doi: 10.1016/j.semarthrit.2008.12.003
  • Briones Vozmediano E, Ronda Pérez E y Vives Cases C (2015). Percepciones de pacientes con fibromialgia sobre el impacto de la enfermedad en el ámbito laboral. Atención Primaria, 47, 205-212. Doi: 10.1016/j. aprim.2014.06.002
  • Broadhead WE, Ghelbach SH, de Gruy FV y Kaplan BH (1988). The Duke Unc functional social support questionnaire: Measurement for social support in family medicine patients. Medicine Care, 26, 709-723.
  • Collado A, Gómez E, Coscolla R, Sunyol R, Solé E, Rivera J, Altarriba E, Carbonell J y Castells X (2014). Work, family and social environment in patients with Fibromyalgia in Spain: an epidemiological study: EPIFFAC study. BMC Health Services Research, 14, 513. Doi: 10.1186/s12913-014-0513-5
  • Collado A, Torres X, Arias A, Solé E, Salom L, Gómez E y Arranz L (2016). La fibromialgia: Consejos y tratamientos para el bienestar. Barcelona: Amat Editorial.
  • Cunningham MM y Jillings C (2006). Individuals’ descriptions of living with fibromyalgia. Clinical Nursing Research, 15, 258-273. Doi: 10.1177/1054773806291853
  • Escudero Carretero MJ, García Toyos N, Prieto Rodríguez MA, Pérez Corral O, March Cerdá JC y López Doblas M (2010). Fibromialgia: percepción de pacientes sobre su enfermedad y el sistema de salud. Estudio de investigación cualitativa. Reumatología Clínica, 6, 16-22. Doi: 10.1016/j.reuma.2009.04.008
  • Esteve Vives JJ y Batlle Gualda E (2006). Evaluación de pacientes con fibromialgia. Estudio comparativo de 4 versiones españolas del Fibromyalgia Impact Questionnaire (FIQ). Reumatología Clínica, 2, 283-288. Doi: 10.1016/S1699-258X(06)73062-5
  • Forsythe LP, Romano JM, Jensen MP y Thorn BE (2012). Attachment style is associated with perceived spouse responses and pain-related outcomes. Rehabilitation Psychology, 57, 290-300. Doi: 10.1037/a0030083
  • González A, Fernández P y Torres I (2010). Aceptación del dolor crónico en pacientes con fibromialgia: adaptación del Chronic Pain Acceptance Questionnaire (CPAQ) a una muestra española. Psicothema, 22, 997-1003.
  • González A (2014). Dolor crónico y psicología: actualización. Revista Médica Clínica Las Condes, 25, 610-617. Doi: 10.1016/S0716-8640(14)70081-1
  • Hayes SC, Strosahl K y Wilson KG (2014). Terapia de Aceptación y Compromiso. Proceso y práctica del cambio consciente (Mindfulness). Bilbao: Desclée De Brouwer.
  • Hidalgo FJ (2011). Fibromialgia. Consideraciones etiopatogénicas. Revista de la Sociedad Española del Dolor, 18, 342-350.
  • Jay GW y Barkin RL (2015). Fibromyalgia. Disease-a-Month 61, 66-111. Doi: 10.1016/j.disamonth.2015.01.002
  • Kool MB, Van Middendorp H, Boeije HR y Geenen R (2009). Understanding the lack of understanding: Invalidation from the perspective of the patient with fibromyalgia. Arthritis Care & Research, 61, 1650-1656. Doi: 10.1002/art.24922
  • Kostova Z, Caiata-Zufferey M y Schulz PJ (2014). The impact of social support on the acceptance process among RA patients: A qualitative study. Psychology & Health, 29, 1283-1302. Doi: 10.1080/08870446.2014.925895
  • Luciano JV, Guallar JA, Aguado J, López-del-Hoyo Y, Olivan B, Magallón R, Alda M, Serrano Blanco A, Gili M y García Campayo J (2014). Effectiveness of group acceptance and commitment therapy for fibromyalgia: A 6-month randomized controlled trial (EFFIGACT study). Pain, 155, 693-702. Doi: 10.1016/j.pain.2013.12.029
  • Madden S y Sim J (2006). Creating meaning in fibromyalgia syndrome. Social Science & Medicine, 63, 2962-2973. Doi: 10.1016/j.socscimed.2006.06.020
  • Marcus DA, Richards KL, Chambers JF y Bhowmick A (2013). Fibromyalgia family and relationship impact exploratory survey. Musculoskeletal Care, 11, 125-134. Doi: 10.1002/msc.1039
  • Mas AJ, Carmona L, Valverde M y Ribas B (2008) Prevalence and impact of fibromyalgia on function and quality of life in individuals from the general population: results from a nationwide study in Spain. Clinical & Experimental Rheumatology, 26, 519-26.
  • McCracken LM (1998). Learning to live with the pain: Acceptance of pain predicts adjustment in persons with chronic pain. Pain, 74, 21-27.
  • McCracken LM (2005). Social context and acceptance of chronic pain: The role of solicitous and punishing responses. Pain, 113, 155-159. Doi:10.1016/j.pain.2004.10.004
  • McCracken LM, Carson JW, Eccleston C y Keefe FJ (2004). Acceptance and change in the context of chronic pain. Pain, 109, 4-7. Doi: 10.1016/j.pain.2004.02.006
  • McCracken LM y Eccleston C (2003). Coping or acceptance: What to do about chronic pain?. Pain, 105, 197-204.
  • Monterde S, Salvat I, Montull S y Fernández Ballart J (2004). Validación de la versión española del Fibromyalgia Impact Questionnaire. Revista Española de Reumatología, 31, 507-513.
  • Montoya P, Larbig W, Braun C, Preissl H y Birbaumer N (2004). Influence of social support and emotional context on pain processing and magnetic brain responses in fibromyalgia. Arthritis & Rheumatism, 50, 4035-4044. Doi: 10.1002/art.20660
  • Olson DH, Portner J y Lavee Y (1985). FACES III. St. Paul, MN: University of Minnesota.
  • Pascual A (2008). Fibromialgia y Escuelas para familiares: Aprender a vivir con la enfermedad. Pasaba por aquí… Revista de Actualidad Sociosanitaria, 5, 13-15.
  • Rodero B, Casanueva B, Luciano JV, Gili M, Serrano-Blanco A y García Campayo J (2011). Relationship between behavioural coping strategies and acceptance in patients with fibromyalgia syndrome: Elucidating targets of interventions. BMC Musculoskeletal Disorders, 12, 1. Doi: 10.1186/1471-2474-12-143
  • SER (2003). Estudio Epidemiológico del Dolor en Reumatología en España (EPIDOR). Madrid: Edipharma.
  • Söderberg S, Strand M, Haapala M y Lundman B (2003). Living with a woman with fibromyalgia from the perspective of the husband. Journal of Advanced Nursing, 42, 143-150. Doi: 10.1046/j.1365-2648.2003.02597.x
  • Triviño A, Solano MC y Siles J (2016). Aplicación del modelo de incertidumbre a la fibromialgia. Atención Primaria, 48, 219-225. Doi: 10.1016/j.aprim.2015.04.007
  • Ubago MDC, Ruiz I, Bermejo MJ, Labry A y Plazaola J (2005). Características clínicas y psicosociales de personas con fibromialgia: Repercusión del diagnóstico sobre sus actividades. Revista Española de Salud Pública, 79, 683-695. Doi: 10.1590/S1135-57272005000600008
  • Ubago MDC, Ruiz I, Bermejo MJ, Labry A, Hernández E y Plazaola J (2008) Analysis of the impact of fibromyalgia on quality of life: associated factors. Clinical Rheumatology, 27, 613-619. Doi: 10.1007/s10067-007-0756-1
  • Van Koulil S, Van Lankveld W, Kraaimaat FW, Van Riel PL y Evers AW (2010). Risk factors for longer term psychological distress in well-functioning fibromyalgia patients: A prospective study into prognostic factors. Patient Education & Counseling, 80, 126-129. Doi: 10.1016/j.pec.2009.08.001
  • Vázquez J, Ramírez DN y Zarco JV (2001). Entorno familiar y paciente crónico. SEMERGEN-Medicina de Familia, 27, 24-26. Doi: 10.1016/S1138-3593(01)73669-6
  • Viane I, Crombez G, Eccleston C, Poppe C, Devulder J, Van Houdenhove B y De Corte W (2003). Acceptance of pain is an independent predictor of mental well-being in patients with chronic pain: empirical evidence and reappraisal. Pain, 106, 65-72.
  • Vlaeyen JW y Linton SJ (2000). Fear-avoidance and its consequences in chronic musculoskeletal pain: A state of the art. Pain, 85, 317-332.
  • Yeung EW, Davis MC, Aiken LS y Tennen HA (2015). Daily social enjoyment interrupts the cycle of same-day and next-day fatigue in women with fibromyalgia. Annals of Behavioral Medicine, 49, 411-419. Doi: 10.1007/ s12160-014-9666-z
Fuente de los datos: Dialnet